This devastating news could make it easy for Brian to crumble beneath the weight of such a grim prognosis. But rather than surrendering to this disease, Brian is reacting courageously.
He immediately stated that his goal would be to thrive and fight his battle for longevity! His main inspiration is so that he can spend more years with his son, Logan, and his daughter, Elena.
Brian is determined to stay positive while trying to live with a continued purpose as productively and independently as possible. He is a fighter who is fully prepared to go wherever he needs to go and do whatever he needs to do for the opportunity to live longer. He has hope that the medical research being done today will result in a treatment that will slow down, stop, or reverse the progression of his condition.
Brian has investigated and sought treatments that will give him the chance to aggressively fight this dreaded disease. Immediately following his diagnosis, he sought clinical trials to gain access to promising experimental ALS drugs and therapies. It is Brian’s hope that by participating in these trials, he will experience an improvement in his condition. Between October 2019 and September 2020, he traveled to the University of California, Irvine ALS Clinic eight times to take part in a phase 3 trial for an experimental treatment called NurOwn. Following that, in November 2020, Brian enrolled in the Healey Platform Trial at the Penn State hospital in Hershey, PA to access the experimental treatment, Zilucoplan.