It’s Brian’s hope that by participating in the trial, he will experience an improvement in his condition. Also, following the study, he hopes that the FDA will quickly approve the experimental treatment, allowing both him and other patients the chance to extend their lives long enough for a cure to be developed.
Participating in the trial, preparing for the future stages of the disease, and requiring extensive medical care undoubtedly will cause a hefty financial burden on Brian and his family. To participate in the study, Brian will be required to travel to the University of California, Irvine ALS Clinic 14 times over a 12-month period. There will be substantial costs associated with this travel in addition to still having to pay the mortgage and regular monthly bills. This is the reality that this family will have to deal with.
Brian will begin to feel overwhelmed by the substantial financial burden associated with his efforts to gain access to life-extending treatments. But his faith and spirit are bolstered by the statements of support that he is receiving from family members and friends. He is on the right path.
Now it’s up to us to make sure he can keep his focus on the path ahead and not on any financial burden. Let’s help make sure that money isn’t a deciding factor that prevents Brian from being able to receive the care and services that he is going to need — today and in the months and years ahead.
Please support Brian during his battle over ALS for longevity and a better quality of life. Logan and Elena will greatly appreciate any help you can give knowing that their father is receiving good care and the best possible shot at overcoming this cruel and terrible disease.